Science

Would you pay to have the ‘best baby’? Liberal eugenics and the troubling quest for human perfection

It is hard to be young and to know that you are growing weaker rather than stronger.

✦ Extractive summary — built from the sources' own reporting•From 1 source•1 min read•Updated October 27, 2026, 5:00 AM UTC
Key points
  • Eventually, at the age of three, I was diagnosed with a form of spinal muscular atrophy (SMA).
  • Now it is returning in a new commercial guise For a very long time, I dreamed of being cured.
  • I learned to walk early enough, but I stumbled and fell more easily than other children.

It is hard to be young and to know that you are growing weaker rather than stronger.

In the 1980s, the precise mechanics were not yet understood, but the condition was known to be hereditary, probably linked to a recessive gene.

My parents began to worry that something was wrong, that my muscles were weaker than they should be.

How this summary was made: extractive summary — built from the sources' own reporting. It is drawn only from the reporting of the sources listed below — read the originals for full detail. How we summarize →

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